4. Providing financially for the successor caregiver and their family.
The caregiver who replaces the parent is the key to carrying out the parent’s desires for their child. Due to the distribution limitations of a special needs trust and the enormous responsibility the caregivers are assuming, as well as the pressure it places on the family, it is suggested that a Caregiver Trust be created. The purpose of the "Caregiver's Trust" is to make the situation more bearable for the caregiver and the caregiver’s family. It cannot be emphasized strongly enough the need to provide for the caregiver and the caregiver’s family. A stressed-out caregiver is of no value to the disabled child. For that reason, there must be resources available to relieve the pressure on the caregiver and the caregiver’s family. This is the most overlooked aspect of the planning process. This is, however, a reasonable recommendation considering the strain that caring for a child with a disability puts on the caregiver and the caregiver’s family.